Brain health registry

Brief Description

The purpose of the online Brain Health Registry is to recruit and observe people who are interested in promoting healthy brain function through the prevention of brain diseases, disorders, and injuries in adults. Participation involves answering questions about your health, lifestyle, and medical history and taking online brain tests. Researchers hope to build a large pool of potential participants for clinical trials, reducing the time and cost of research. For more information, visit www.brainhealthregistry.org.

Patient Qualifications

 

Min Age Max Age Gender Healthy Volunteers
18 Years
N/A
Both
Accepts Healthy Volunteers
Inclusion Criteria:

None listed.

Exclusion Criteria:

None listed.

 

Detailed Description:

The Brain Health Registry is an online registry for people interested in research on new treatments for Alzheimer’s disease, Parkinson’s disease, depression, post-traumatic stress disorder, and other conditions that affect brain function. Anyone age 18 years and older can join the Brain Health Registry. To enroll, participants complete basic contact and demographic information and consent to participate. After enrollment, participants complete questionnaires about health, lifestyle and medical history, as well as computerized tests of memory, attention, and speed of processing new information and organization.

Participants in the registry will be invited to repeat the questionnaires and brain tests every 3-6 months so researchers can gather information about changes in brain function over time. For most people, participation will take less than 3 hours per year. Currently, the online tests must be taken on a desktop or laptop, not on mobile devices such as tablets and smartphones.

Participants may give researchers permission to access medical records and may provide a saliva sample for genetic screening and a blood sample to better understand general health, but this is optional. They will also learn about future clinical trials that test diagnostic tools or potential treatments for brain disorders and be given an opportunity to participate.

 

Central Contact Information:

For more information, visit www.brainhealthregistry.org. To enroll, visit https://my.brainhealthregistry.org/register

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