Some major medical centers, like Dana Farber, Memorial Sloan Kettering and Vanderbilt, use their own funds and funds from philanthropists to pay for genome sequencing. But then another issue arises, the group told Mr. Biden’s staff. Each medical center keeps its own records of what mutations were found, what drugs were tried and how the patients fared.
The cancer research association has started a pilot project with seven medical centers to share such information. It includes 17,000 patient samples, said Dr. Mary M. Zutter, professor of cancer biology and director of the tumor-host interaction program at the Vanderbilt Ingram Cancer Center.
But different centers use different formats to store genetic sequencing data and have very different ways of describing patient outcomes.
“You’d think it would be easy, but there are so many challenges,” Dr. Demetri said. “Patient privacy and everybody collecting data in their own way. Clinical outcomes are often in free text fields — ‘the patient feels better today.’ ”
The above scenario tells you disparate health data and each cancer center working for their own population. We need to participate in our health and create a future that is cancer-free.
https://www.indiegogo.com/projects/genetic-health-data-and-health-concierge-cancer/x/3335495
Why would you have your complete DNA sequence by our lab partner in Davis, California?
- You will participate in finding a cure for cancer as scientist finds actionable health data from your de-identified health data (genome test,surveys and other patient generated health data).
- You will get free health coaching from Motherhealth
- You will pave the way for more actionable health data that can transform the way we prevent cancer and find a cure.
Email motherhealth@gmail.com for more info on how to get a complete DNA sequence test. In the coming months, we will come out with a genetic test ( more precise than mammaprint test ) to detect cancer before it progress and another genetic test to measure your molecular age.
